What is CLL?

CLLPAG is a volunteer-run patient organization. As we don’t have the resources to create our own materials we rely on the following excellent resources from other organizations.

Clinical Trials

Canadian Clinical Trials

Canadian Clinical Trials has a complete and updated list of CLL trials in Canada.

http://www.canadiancancertrials.ca

Canadian Clinical Trials Education Website Launched

The Network of Networks website “It Starts With Me” was developed to provide the basics on clinical trials for the public (in English and French). The website’s development was supported in part by a CIHR SPOR Patient Engagement Collaboration Grant, which facilitated the work with patients and caregivers.

http://itstartswithme.ca/

Other Resources

CLL Compass

my cll compassMy CLL Compass is an online tool that helps Canadian patients and caregivers get the information they need and help alleviate anxiety or confusion they may be feeling after a chronic lymphocytic leukemia (CLL) diagnosis.

The educational website provides information and tips on living with CLL (including “Watch and Wait”), resources for patients and caregivers, questions to ask a doctor, and more. Through an interactive quiz with printable results, patients can learn more about the unique factors they should consider when choosing the options that are right for them, such as other medical conditions, personal health goals and lifestyle factors.
My CLL Compass aims to empower people living with CLL have informed discussions with their doctor along their journey with the disease. The website, made possible by financial support from Hoffmann-La Roche Limited (Roche Canada), was developed in collaboration with an expert steering committee of healthcare professionals, patients and key patient organizations, including CLL Patient Advocacy Group (CLLPAG), The Leukemia and Lymphoma Society of Canada (LLSC), and Lymphoma Canada.

Visit My CLL Compass and take the quiz today: http://www.mycllcompass.ca

Rebecca Drotos, CLLPAG Board Director has provided media input for My CLL Compass and you can find her interviews at these links:

Niagara This Week

Huffington Post

Someone in My Family Has Cancer: A video for kids and parents

A diagnosis of cancer is devastating, not only for the patient, but also for his or her entire family. Lundbeck Canada has developed an animated video aimed at helping children better understand cancer in the family and help them cope with the situation. This video is meant as a conversation starter and should not replace an open conversation between a child and an adult. Watch it with your children or grandchildren.

http://www.lundbeck.com/ca/en/focus-and-expertise/oncology