CLL Live

Education is key for patients and their loved ones to be true partners in their treatment. CLL Live conferences provide participants with an opportunity to hear from leading experts in CLL research and care from around the world, who volunteer their time to speak at our conferences. As a result, conference attendees are better informed and equipped to ask their healthcare team pertinent questions about their own treatment plan.

Participant evaluations indicate very high satisfaction with the information provided, the networking and fellowship, and the sense of hope gained.
CLL Live is provided free of charge to participants as conference costs are covered by educational grants from sponsors. Participants do need to pay for their own accommodation and travel. The conferences are held in Niagara Falls.

Our conference partners have included Lymphoma Canada, Leukemia and Lymphoma Society of Canada and Juravinski Cancer Center.

For CLLPAG members, registration for CLL Live 2018 will start in December. A draft agenda will be posted soon. For more information, contact cllpag.canada@gmail.com.

PREVIOUS CONFERENCES

CLL Live 2015 Recent Developments in CLL Treatments

European, American and Canadian Perspectives

April 21-24, 2015 Sheraton on the Falls

CLL Live 2015 brought together over 260 patients, caregivers and other supporters, with attendees from Canada, the United States, the United Kingdom and Australia. There was tremendous excitement about new therapies that allow doctors to further refine treatment to individual patient needs and increase durable remissions. Feedback from patients was overwhelmingly positive!

CLL Live 2015 visual
2015 presentation

CLL Live features leading CLL & SLL experts from North America and Europe.

2015 faculty included: : Dr. Leclair; Dr. Fraser; Dr. Mittmann; Dr. Lamanna; Ms. Streu, RN; Dr. Hallek; Dr. Keating.

Drs Fraser, Hallek and Keating web
Drs. LeClair, Mittmann, Lamanna and Erin Streau RN web

You can watch CLL Live 2015 presentations on YouTube:

 

Clinical CLL/SLL 101
By Graeme Fraser, MD, FRCPC
Clinical Hematologist, Juravinski Cancer Centre, Hamilton Health Sciences
https://youtu.be/_e59sLysmaA?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

CLL/SLL and Evolution of Treatment
By James Johnston, MB, BCh, FRCPC Hematologist, CancerCare Manitoba
https://youtu.be/19MpkyPbyOA?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

European Perspective on CLL
By Michael Hallek, MD
Chair, German CLL Study Group
https://youtu.be/nnkCoqNbzlE?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

American Perspective on CLL
By Michael J. Keating, MB, BS
President and CEO, CLL Global Research Foundation
https://youtu.be/edM4ICD0S8c?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

Canadian Perspective on CLL Research
By Spencer Gibson, PhD
Scientific Chair, CLL Patient Advocacy Group
https://youtu.be/aosBbqf9iEs?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

Pharma-Economic Implications of New Drug Treatments
By Nicole Mittmann, PhD
Executive Director, Health Outcomes and Pharmacoeconomics (HOPE) Research Centre, Sunnybrook Research Institute
https://youtu.be/_QtdfusXy7s?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

Prognostic Testing
By Susan Leclair, PhD
Chancellor Professor of Medical Laboratory Science, Department of Medical Laboratory Science, University of Massachusetts Dartmouth,
https://youtu.be/xaiGv95jdkc?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

Secondary Cancers
By Erin Streu, RN, MN, CON(C)
Clinical Nurse Specialist, CancerCare Manitoba, Winnipeg, Manitoba, Canada
https://youtu.be/1aqe9voPNWg?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

When and How to Treat By Nicole Lamanna, MD
Hematologist/Oncologist, New York-Presbyterian/Columbia University Medical Cente
https://youtu.be/5wrtLA8UOhM?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

Hematology Panel
Panelists: Dr. Ronan Foley; Dr. James Johnston; Dr. Susan Leclair; Dr. Nicole Lamanna; Dr. Michael Keating; Dr. Spencer Gibson

A panel of physicians and scientists answered questions from participants at CLL Live 2015, April 24, 2015, Niagara Falls, Ontario.
https://youtu.be/06uTR3aMtzQ?list=PLRKaKoReaLcjVOlzBNORrxCFbZAds9I57

 

Andrew Schorr, from Patient Power, interviewed some of our speakers. You can see those videos here: https://www.patientpower.info/organization/cll-patient-advocacy-group.

2012 visual

There were 220 attendees at CLL Live 2012, another crowd-pleasing event with excellent educational opportunities and networking.

The sessions included the following topics and speakers.

  • Global CLL Research by Dr. Micheal Keating (the keynote presentation), Professor of Medicine in Hematology, University of Texas M. D. Anderson Cancer Center, Houston, Texas; President & CEO of the CLL Global Research Foundation
  • Special presentation by Dr. Mathias Rummel, head of the Department for Hematology at the Clinic for Hematology and Medical Oncology at the Justus-Liebig University-Hospital, Giessen, Germany
  • Watch & Wait by Dr. Graeme Fraser, Hematologist, Juravinski Cancer Centre; Assistant Professor, Department of Medicine, Oncology, McMaster University, Hamilton, Ontario
  • Stem Cell Transplantation by Dr. Stephen Couban, Service Chief and Interim Head of the Division of Hematology and Director of the Blood and Marrow Transplant Program, Capital District Health Authority, Halifax, Nova Scotia
  • Outcomes & Treatments for Older Patients by Dr. Joseph Flynn, Co-Director of the Division of Hematology, Artur G. James Cancer Hospital, Ohio State University, Columbus, Ohio
  • Current Research in Canada by Dr. Spencer Gibson, Professor, University of Manitoba; Director of Translational Research, Manitoba Institute of Cell Biology, Winnipeg, Manitoba
  • Facing Therapy Decisions with Your Eyes Wide Open by Dr. Chaya Venkat, Chief Science Writer, CLL Topics, Sedona, AZ
  • Understanding Bloodwork by Dr. Susan Leclair, Chancellor Professor, Department of Medical Laboratory Science, University of Massachusetts Dartmouth, Dartmouth, Massachusetts
  • We also had sessions on nutrition, a doctor panel, and a patient panel.
  • Andrew Schorr, from Patient Power, interviewed some of our speakers. You can see those videos here: https://www.patientpower.info/organization/cll-patient-advocacy-group.

We also had the opportunity to remember Dr. Terry Hamblin, a dedicated supporter of CLL Live and the CLL community at large, who sadly passed away in January, 1012.

Please watch this video >>

CLL Live 2009: Trends in Treating CLL

Sheraton Fallsview –¬†April 24-25, 2009

Our second conference was another success, with 307 participants joining us in Niagara Falls.

(click image to enlarge)

Presenters included:

  • Dr. Terry Hamblin, Consultant Haematologist, Bournemouth; Professor of Immunohaematology, Southampton, UK
  • Dr. Bill Wierda, Hematologist-Oncologist, Associate Professor of Medicine, MD Anderson Cancer Center, Houston, Texas
  • Dr. Neil Kay, Professor, Department of Medicine, Hematology, Mayo Clinic, Rochester, Minnesota
  • Dr. Joseph Flynn, Director of Clinical Operations, Hematology, Artur G. James Cancer Hospital, Ohio State University, Columbus, Ohio
  • Dr. Susan Leclair, Chancellor Professor, Department of Medical Laboratory Science, University of Massachusetts Dartmouth, Dartmouth, Massachusetts
  • Dr. Robert Robetorye, Assistant Professor, University of Texas Health Sciences Centre, Pathology, San Antonio, Texas
  • Dr. Ronan Foley, Hematologist, Jurvinski Cancer Centre; Chair, Clinical Network of the Canadian Bone Marrow Transplant Group (CBMTG), Hamilton, Ontario
  • Dr. Spencer Gibson, Professor, University of Manitoba; Director of Translational Research, Manitoba Institute of Cell Biology, Winnipeg, Manitoba
  • Dr. David Spaner, Hematologist, Sunnybrook Health Sciences Centre; Professor, Department of Medical Biophysics, University of Toronto, Toronto, Ontario
  • Dr. Graeme Fraser, Hematologist, Juravinski Cancer Centre; Assistant Professor, Department of Medicine, Oncology, McMaster University, Hamilton, Ontario
  • Dr. Brian Leber, Professor of Medicine and Laboratory and Molecular Medicine, McMaster University, Hamilton, ON
  • Dr. Chaya Venkat, Chief Science Writer, CLL Topics, Sedona, AZ

CLL Live 2007: Trends in Treating CLL

White Oaks Resort – April 20-21, 2007

The inaugural CLL Live surpassed all of our expectations. It marked the first major patient-initiated and patient-run conference in North America. Even though putting on a conference for over 225 participants from Canada and the USA was a lot of hard work, the overwhelmingly positive feedback from attendees made it all worthwhile and inspired CLLPAG to host future conferences.

(click image to enlarge)

Presenters included:

  • Dr. Terry Hamblin, Consultant Haematologist, Bournemouth; Professor of Immunohaematology, Southampton, UK
  • Dr. John Byrd, Director, Hematologic Malignacies Program, James Cancer Hospital and Solove Research Institute, Columbus, Ohio
  • Dr. Susan Leclair, Chancellor Professor, Department of Medical Laboratory Science, University of Massachusetts Dartmouth, Dartmouth, Massachusetts
  • Dr. Ronan Foley, Hematologist, Jurvinski Cancer Centre; Chair, Clinical Network of the Canadian Bone Marrow Transplant Group (CBMTG), Hamilton, Ontario
  • Dr. Graeme Fraser, Hematologist, Juravinski Cancer Centre, Hamilton, Ontario
  • Dr. Stephen Sagar, Radiation Oncologist, Juravinski Cancer Centre, Hamilton, Ontario
    Laura Cleveland, Patient and Patient Advocate, Columbus, Ohio